Grieving

Friends and Family,

I avoid negativity. I try to be uplifting to other people through my blog and personal connections. I do the same for my own benefit because we could all use more realistic positivity. But sometimes bad things happen, and not talking about them doesn’t make them go away.

Even meditation doesn’t help sometimes.

I just lost a friend to lung cancer. I’ve known Helen for almost five years through our local survivors’ group that meets every month. She was a good human being who cared about others, worked for causes greater than herself, and fought like hell to stay alive. It hurts so much to lose her. Nine months ago, we lost Dawn, and I still think about her almost every day. I do a double take every time I see a picture of her daughter Nikki on Facebook because I see so much of Dawn in her.  A couple of years before that there was Carla, and before that Lyn. There have been others I’m afraid I can’t remember, but chemo brain still causes me memory problems. And there are many other friends from everywhere else whom I have also lost to lung cancer. Yet despite all the losses that pile up, I hope that you, too, can find a local survivor group to be a part of. The reason it hurts so much to lose these people is because of how much they all meant to me, because of how much I benefited from being with them. It has been worth the hurt.

One of the reasons many elderly people get depressed is that they outlive the people they care about, so they are in a near-constant state of grief. It’s like that with lung cancer, except it doesn’t matter what age you are, and we lose people faster. Knowing we may also have to say goodbye one day makes it harder to get close to people with the disease.

But I keep trying, keep reaching out. My world is richer – and I’m a better person – because of each of these people, and the pain is tempered by the good memories. And I’m convinced that every one of them lived better, richer, longer lives because they were part of our community. That brings some solace.

Early on, I struggled with survivor’s guilt. Why should I get to live while another person, perhaps one more worthy than me, doesn’t?

This is something I struggled with for years before my therapist pointed out the obvious: “So you think that this is a zero-sum game? That because you’re alive, someone else isn’t? That you’re taking their place?” I thought about this, along with something else he said that was thought-provoking: “Maybe it’s the opposite. Maybe because you live longer, you inspire others to live longer, too.” I think he’s right. I think that’s a good part of why I write my blog.

I had my scan last week, and the cancer is stable. I’m going to celebrate that, even as I think about the losses, because that’s how we make it through this.

Love,

Dann

It's Complicated.

Friends and Family,

Have you ever had times when you just knew that everything was going to go your way, except for maybe one little niggling doubt? That’s how it was for me before my CT scan last week. I was feeling great, with no real doubts. Except that I was irritable for two days before my scan. Hmm… 

It was easy to feel optimistic because my back has been feeling better and my lungs are feeling great. I’ve been able to run around the gym like a 50 year-old. I would have said like a 25 year-old, but hey. Let’s be real.

I was feeling faster than a speeding bullet…

                                         &nb…

                                                                          "Bullet"

More powerful than a locomotive…

And able to leap tall buildings in a single bound.

For those of you who didn’t grow up when Superman was on TV in black and white, those words are a direct quote from the announcer at the beginning of every show. The power of feeling good was intoxicating! I was feeling like Superman!

It’s times like these that I forget about the future, feel great for now, and don’t worry about what will come next.

In case you haven’t guessed, my scan results were spectacular! That means they were unchanged. Six more weeks of still having cancer in my lungs, but not having it grow, seems pretty spectacular to me!

So why was there still another niggling little something bothering me? What was it?

Digging a little deeper, I figured it out. I was feeling guilty.

I know, this doesn’t seem to make any sense. Except it does.

It's complicated. First, there are the recent deaths of two people I know who had cancer. One was more of an acquaintance to me, but the other person, Larry, had become important to me in a very short period of time. He was making a remarkable recovery from esophageal cancer, and I had been vicariously thrilled at his successes with cancer – and with life. His passing was sudden and unexpected. I hurt for him, I hurt for his family, and I hurt for me.

More recently, my buddy Craig, who has been on AZD9291 longer than me, has had some growth in his cancer. He is still in the process of working out with his doctors how they will manage this change. If you have a minute to pop by https://craigblower.wordpress.com/ and say a word or two of support, I’m sure he would appreciate it.

But why should I feel guilty about being alive, while others have either passed on, or are dealing with increasing symptoms? Is it fair that it’s not happening to me? I’ve never asked the question so many people in my situation ask, “Why me?” From the first day I was diagnosed, I have believed that things randomly happen to people, just like some people are unlucky enough to die in a plane crash or when a tree crashes through their roof. However, the question I have often asked myself, and I have even asked you, is “Why not me?”

I have been telling you for almost nine years about everything you and I are doing together to help me stay alive, and yet I still feel guilty that I’m alive. That’s a little self-defeating, isn’t it? There’s a name for it. It’s called survivor’s guilt.

This is where having a great therapist comes in. Duane nailed it for me. “It sounds like you’re assuming that only a limited number of people get to live, so if you live, you’re taking someone else’s place.” Booya! That one hit me between the eyes. So this is what it means to have survivor’s guilt! Just getting this crazy logic clear in my head makes it easier to move on. Not immediately, but I'm getting there.

Why does there have to be a limited number of survivors? Can’t everybody survive? That's the goal, isn't it?

Things started looking brighter again. Let’s help everybody survive! Let’s help everybody thrive! 

Tell you what. I’ll keep telling you what I think is keeping me alive, and you keep helping. Together we’ll do the best job possible to help other people see how they might do it. And as many of you have told me, the same things work if you want to live a fuller life, even if you don’t have a life-threatening disease.

For me, it all boils down to love and attitude. Your love, and your supportive and upbeat attitude. My love, and my upbeat attitude. There is a lot of action behind both of these words. But for me, love and attitude are at the heart of it.

That’s one reason why I end each email by saying:

Love,

Dann