Your Thoughts on Why I am Still Alive June 14, 2014

Family and Friends,

Thank you very much for all of your thoughts about why I am still alive. I appreciate all the time and love that went into your responses. I plan to use your answers to help me stay better focused on what is working. Hopefully this will keep me alive even longer! In addition, as I said when I asked the question, I plan to share this with others, starting with all of you. I am also hoping that others with cancer will find some benefit in how it may apply to them.

In particular, today I want to share this with Larry, and with Tricia’s sister. Both were just diagnosed with cancer. I can tell you from experience that they are going through the hardest part of the entire cancer experience right now. To me, the time when you first find out is harder than the entire rest of the experiences COMBINED. If you have positive thoughts, prayers or love you want to send their way, even if you don’t know them personally, please either email me or add your comments on my blog and I will forward them.

On to your comments. The responses were heartening, humbling, and almost overwhelming. Again, I am very grateful for your responses. I did my best to pull the kernels from each one, and grouped them in a way that made sense to me. I hope this also makes sense to you.

Here they are:

ATTITUDE

“These four words: open-ness, loving-ness, learning-ness, and receiving-ness. I'm not sure what order they would be. It's more of a circle with them all being related to each other.”

“It takes openness, intentionality (every second!!), love, and power to do this.”

“1.) Your positive outlook on life; 2.) Your strong desire to never give up”

”Your attitude. You have battled cancer head on and from my perspective have never given up even in the face of bad news at times. From talking to you and your emails your attitude has always been positive and optimistic even when things have gone sideways.”

“Attitude is just about everything in fighting off cancer.”

“Positive energy. That being said I believe that the positive energy gets to you because you have shared your story with so much love and positive attitude -- and what one sends out into the world comes back many times over -- like an echo :-).”

“You are more alive than most people who do not have cancer
And that much ALIVE does not dim easily
Your light shines brighter more fully so it cannot easily be extinguished”

“You "REFUSE" to give and say enough is enough.”

“My sister who has breast cancer states emphatically that it is ATTITUDE that makes all of the difference. This is born out in studies.”

“Never for one moment, have you ever projected self-pity. Your selfless and undaunted attitude about your circumstances is an attitude that could very well be a psychological tool to defeat, defer, or stop the spread of cancer.”

“Your ability to focus on a positive outcome, your ability to engage in your valued daily routines such as work, rest and play, your ability to surround yourself with people who like you, your ability to create boundaries, your ability to laugh and enjoy the small miracles that occur…” Christine

“You have found the sweet spot between keeping negativity at bay and bringing in love through your generosity and interest in others.” – Linda

“I think that all the emotional work you have done, including setting boundaries … has been huge. And, here's where I am going with this. Your journey is benefiting others.”

INTENTIONALITY

“Intentionality is absolutely the cornerstone of why you are still alive. I believe it has always been your intention to stay alive and enjoy your wonderful life. Ongoing health is all about your intention.”

“Ongoing health is all about your intention and the intention of all who love you.”

“Having a purpose greater than me to which I feel responsible.”

GENEVIEVE (LOVE!)

“The love and support of Gen who, if I believed in saints she would qualify!! She's been with you every step of the way and I'm sure as with you she has not let your cancer get her down or affect her attitude.”

“Gen has helped switch your DNA through her art pieces and these I believe are channeled specifically to light you up when the colors and shapes hit your optics. (They also have some kind of sounds associated with them.) That said, you both are allowing (encouraging? pulling?) healthy lungs from the DNA strands (another type of string theory?) to come to live in this reality.”

“Hugs my dear friend and hugs to Genevieve for all that love she gives you. You are so lucky to have each other. That doesn’t hurt survival either! I know Lee kept fighting because he didn’t want to disappoint me.” – Jan

“With Genevieve visualizing and creating her magic, you definitely have an advantage in healing that most do not”

LOVE

“Love is an essential piece of this, and some of it is in how we define love. For me, love is the unconditional acceptance of another as perfect the way they are, fully allowing them to do what they do and be who they are. When I fully allow someone (or some situation) to be the way it is, there is no friction or stress of resisting it. Water does not feel stress of gliding around rocks in the stream. This allowing is very different from resignation about circumstances.”

“You are thriving because you're allowing yourself to be loved. It's not an easy thing to do and requires that you love yourself and all your parts and us and all our parts. Whew! it means that you are healing the planet, us, and yourself at the same time. It's a lightworking job.”

SUPPORT FROM OTHERS

“Writing a daily gratitude for your vibrant EVOLUTION every night. Sending you weekly greeting cards to give you something to look forward to each week besides junk mail! I do all of this because I love you and I know that by staying focused on your daily well-being, it’s one more way to stay present which is something I am learning from you!”

“A good support system and a positive outlook help immeasurably and you have that in spades.”

GOD / SPIRITUALITY

“You have a team, a subset of your village, that is working on your physical healing from a spiritual standpoint. Gen, of course, leads the charge in a big way, but others of us are following her lead... the power of prayer and spiritual practice.“

“I think God has given you a gift for the kind, thoughtful and gentle life you choose to lead.”

“Continuing to pray for you and your family and the doctors for your continued healing.”

“God has answered all of our prayers.”

“We have been praying for you and will continue to do so.”

PURPOSE ON THIS PLANET

“It is pretty clear to me the way you deal with a significant illness is so empowering to others that your purpose on this (our) planet earth is largely seen as a work of art. So much so you had the burden of having a variation of the same disease return and Once again you have found a way to navigate the challenges all over again. Your perspective, toughness and overall light heartedness is appreciated by so many that apparently our maker loves what you do. I (we) do too. You are special man and I am so thankful you are in my life.”

“Quite simply, you are still alive because you are not finished yet. This journey you are on, the cancer journey, is not only a soul lesson for you, buy you are providing an amazing glimpse into our own souls, and the power that lies within each of us. This is the work you came to do.” - Laurie

“Simply because you are a wonderful person and it’s waaaaaay too early for you to leave this planet. You are a treasure to all the people you know and come in contact with!” – Jan

DIET AND EXERCISE

“Diet and exercise are important.”

“You've kept exercising, eating right and paid attention to what your body is telling you.”

OTHER THOUGHTS

“I'm sure the drugs you've been on have also helped but I put them down the list a bit…”

“Finding our own balance between all of the above is key. And, this balance can change over time.”

“A quote from Richard Bach's book Illusions: ‘The test to see if your mission in life is complete, if you are alive, it isn't.’”

“I suspect the secret to your longevity has something to do with a childhood ritual you used to practice of blowing smoke out of your ears after spinning around the requisite number of times of your current age and then puffing. I’m sure the practice strengthened your auto-immune system, your equilibrium, and your tenacity.”

“…and just dumb luck.” - Christine

………………………….

Thank you again for all of your amazing input!

Love,
Dann

Why Am I Still Alive? June 5, 2014

Friends and Family,

We just got the results back from my latest 3-month CT scan, and we are once again ecstatic. NO GROWTH - AGAIN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

By now you're probably saying, "Yea, yea, blah, blah. We were expecting that from you." I can tell you, however, that it NEVER feels like that to either Genevieve or me! For us, it is time to celebrate our quarterly "Gratitude Day." We have every reason in the world to be grateful!

This is different than our DAILY Gratitude Day, only in that today we received terrific news. We celebrate every day because the gift of life is a treasure that could be taken away at any time. It is not an entitlement.

Of course, that's too short to be the end of the story for today. The rest of the story is that I want to ask for your help.

Chaz, a close friend, always asks me great thought-provoking questions. This one, however, is the best. After my last email he replied by asked me why I was living so much longer than the average cancer survivor. "What are you doing differently?"

I gave him my short answer: Attitude, exercise, and the love and support given by an amazing group of family and friends (YOU!). Sensing that there could be more to it, he has asked me the same question many times since then. I offered a couple of more details, but nothing that really added a lot. He wanted an honest, complete answer to a question that, for a lot of reasons, deserves nothing less.

I think there may be more reasons, but I'm not grasping it. I asked Genevieve about this, and she has her own list. I would broadly term many of her ideas as being high on the "woo-woo" scale, but in short I would describe her list as offering me love in every way that she can imagine (including many that I never imagined before this!).

I am continuing to work on my own list, but my list is clearly incomplete. THIS IS WHERE YOU COME IN! As I have said before, it takes a whole village to shrink a tumor, so I am asking for your help. Here is the question:

If you have your own ideas about what is keeping me alive, can you please share your thoughts with me?

These ideas may be based on what I have written, or what you have seen directly from me, or what you or others have done for me, or your own ideas. Two words or two pages, whatever it takes / whatever you would like to share. Profound or routine, obvious or subtle, concrete or esoteric, spiritual or blasphemous. With the stakes so high I am trying to keep an open mind, so ALL ideas are welcome - and appreciated.

I plan to compile a list of responses (condensed for brevity) and make the list available to other people. There are many in the cancer community (yes, there is such a community!) who would love to get more ideas about what could keep them alive. In particular, someone close to me has a family member who was just diagnosed a few days ago, and I want very much to be able to offer him something. As you can imagine, many people with cancer are searching everywhere for answers. Your gift would be shared with people trying to find their way. Of course, I will also make use of the list myself, since it will better help me to keep doing what works best, and to stay alive.

Bonus question for those of you who have had cancer: What do you think is working to keep YOU alive?

There is another reason that I want to compile this list and share it. I suspect it will have value to people far beyond just those who have cancer.

If you specifically give your permission I will include your first name, but if you don't I will assume you want your name left out.

On a completely different note: Many people said that they enjoyed seeing my personal view of how "CAT scans" work. My friend Deb then inspired me to put together an expose' on "lab results." Yes, my sense of humor has literally gone to the dogs. You can get a fresh perspective on lab results as well as seeing past emails at http://dannscancerchronicles.blogspot.com.

Love,

Dann

Counting My Blessings + CAT Scans May 8, 2014

Friends and Family,

Genevieve and I went to see my new oncologist today, but there were no new CAT scan results to go over. That will happen next month. HOWEVER…. I’ve been talking about these CAT scans for eight years, yet never showed you what they look like. Even if you THINK you know what they look like, and even if you have HAD a CAT scan, you will be surprised! Follow the link http://dannscancerchronicles.blogspot.com/ This will give you an entertaining look at how they REALLY work! I can guarantee that you have never seen this before! This should be on NOVA!

What really struck me from today’s appointment was getting the same message from three different people at the clinic. All reminded me how very fortunate I am to still be alive, and all told me in their own way just how rare this is.

First, my new oncologist told me that it’s great to have patients like me, because doctors “need a win every now and then.” He’s happy that not only am I physically doing well, but that I also have great quality of life and a great attitude.

Next John, the nurse’s aide that I have been seeing at the clinic since I was first re-diagnosed (2 years, 9 months ago) told me that it was great to see me… because I’m still alive. He was more tactful than that, but that was the gist of it. He was very surprised when I reminded him that I was first diagnosed five years before I came to OHSU.

Finally, a new nurse came in the room and reviewed my chart before my bone-strengthening injection, and was surprised to see how long I have been coming to OHSU. She said that they don’t get many people that have been coming for that long, let alone still looking healthy.

This is another great day to count my blessings. This includes you, my friends.

Love,

Dann

PS: Go see the CAT scan pictures! http://dannscancerchronicles.blogspot.com/

Genevieve's Healing Art #1

Genevieve has been doing everything within her power (and then some!) to help me beat this cancer. One of the things that she has done is to create a series of artwork. I will add these to my blog on a fairly regular basis.

Here is what she says about her art:

"My art is greatly impacted by the energy of healing it can impart to the viewer. I believe intention and symbology can awaken the “chirotic point,” a place where the optic nerve interfaces with the brain and the subtle properties of healing energy are perceived and received by each cell in the body."

.....................

The first series of artwork I completed during the long hours in the chemotherapy clinic. Each session was a full day affair. Dann was in Chemo from the end of August to December.

I started the series with the intention of having artwork in our daily environment that would give subtle healing messages. Each series of 6 pieces of work represented a piece of the healing process.

#1-

"Green representing the heart energy . The orange circles are the mutant genes leaving, kicked out… by the strong green resilient energy of the high heart."

More Reason for Hope on the Lung Cancer Front!

What a beautiful time in history we are living in. Tarceva didn't even become an approved treatment until two and a half years ago. Last July another drug similar to Tarceva that may be even more effective (afatinib) was approved. See https://www.boehringer-ingelheim.com/news/news_releases/press_releases/2013/15_july_2013_oncology.html.

Thanks to Craig http://craigblower.wordpress.com/ for sharing even more hope for the future of treatment with Tarceva! For most people the cancer eventually finds a way to build resistance to Tarceva, but some angels disguised as medical researchers have found a counter-punch. See http://www.utsandiego.com/news/2014/apr/20/cancer-velcade-cheresh-seguin-ucsd/ for the good news.

After decades of no change in survival rates, now it's hard to keep up with all the really positive news that is coming out of cancer research.

What a great problem to have!

Hope

Friends and Family,

On the North Shore of the island of Oahu, in the town of Laie, Genevieve's grandfather bought a chunk of land back when he was a young man. I'm sure that a few eyebrows were raised when he paid $2,000 for a sand lot in the middle of nowhere. But her grandfather, "Pop," was a man with hope, and he pursued his vision regardless of what other people thought. After WWII he moved a Red Cross infirmary shack onto the property, and then converted it into a home on this isolated beach.

Gradually others discovered that this was one of the best swimming beaches on the island. Later catamarans, kayaks and wind surfers showed up, along with a few surfers. Over time it started looking like Pop's hopes were well-founded. This place was Paradise.

When they were little girls, Genevieve and her sisters used to visit her grandparents at what the local Hawaiian family members still call the "country house." On these visits, their mother would take them on five-mile beach walks to the Point at the end of the next beach, near Kahuku.

This is a beautiful beach with blue and aqua marine water, a gentle surf, and lots of sand. At the Point there is a massive rock that has been there for many thousands of years. When the girls got to the Point they would race to be the first one to make contact with that touchstone. Year after year they came back to the islands, and the daily beach walk to touch the rock became tradition.

By the time I came onto the scene 19 years ago, Genevieve's grandparents had long since passed away, and so the beach house had become a shared family property. Genevieve introduced me to this family home, and to those wonderful early morning beach walks. It wasn't long before the walk, and touching the rock, became part of my tradition too.

Often when we get to the Point and touch the rock (she still races to beat me to it!), we stop to reflect on what a gift this place is. The gratitude and appreciation that the entire family have shown for this family resource (especially since the house was rebuilt) comes up so often that it has become almost a meditation.

Has someone ever asked you to stop and take a moment to think about the most beautiful, serene place in the world that you know? When I am asked that question this place is where I go, and the walks on the beach are an important part of it.

That's what made it so difficult last September, when the cancer had spread to my bones. The pain was too severe to walk for more than a couple of blocks, so each morning I waved goodbye and watched Genevieve disappear down the beach. I wondered if I would ever be able to take that beautiful walk and touch the rock again.

I wondered if this would be one of the hardest of many goodbyes that I would be facing over the coming months. I had started on the "wonder drug" Tarceva several months earlier, but it hadn't touched the bone pain. Even though the cancer wasn't growing any more, the bone pain left me low on hope. Regardless of the scan results, my body was telling me that this was only a stop-gap measure before things got worse.

Not long after that trip, I started radiation for my hips. Over the course of just a few weeks the pain in my hips disappeared, and my spirits started lifting again. However, just before I went in for my final appointment with the radiologist, I tore a disc in my back. It again left me unable to walk for more than a few blocks due to a new pain. It was originally misdiagnosed as arthritis, which sounded permanent to me. Still, I had just enough hope to follow doctor's orders and start physical therapy.

Gradually I started getting some relief. Two months ago I told my therapist that I had a goal. I wanted to walk five miles on the beach and be able to return to the Point again in April. "No problem," she said. "Just keep doing your exercises every day."

Talk about motivation! I kept up those exercises, and now I am back to my regular gym and stair-climbing routine again. I was NOT going to let a few exercises stand between me and the Point! Finally, the disc healed enough so that I am pain free.

All of this leads up to our April trip to Laie. The first morning we woke up to the sounds of roosters at sunrise, then jumped into our swim suits and tee-shirts and set out on the beach. Frequently checking in with myself about how my hips and my back were holding up, my excitement grew as we took in each new part of the beach scenery.

When we finally reached out and touched the rock, tears welled up in my eyes. Genevieve's eyes seemed to have a little extra sparkle too. We took in what this long beach walk meant. I was not only surviving, I was thriving! Doors were opening again!

We pulled together for a long, heartfelt hug. Touching this rock here with Genevieve meant the world to me.

This journey reinforced what I already know, but seem to need to keep re-learning anyway. Pop didn't seem to need any reminders, but I certainly do. It was pretty simple:

Never give up hope.

And you wondered if there was going to be a Point to this story.

Love,

Dann

The only one here that needs any explanation is the photo of me with the glass ball. Yes, I found it on the beach! My first one ever! A positive omen at just the right time... I'll take it!